Articles



Two Lives, Changed


  Posted on Dec 7, 2016 - 2:42pm

The odds, they told her, were astronomical. The chances of her son having a rare disorder were the same as being struck by lightning. And then lightning struck once more. For Barrington, NJ, residents Kelly Sexton and her husband, Ryan, getting an official diagnosis for their two sons, Dylan, 7, and Logan, 5, was a myster...


    Blog


Today Is Moebius Syndrome Awareness Day


  Posted on Jan 24, 2017 - 2:37pm

Jan. 24th is Moebius Syndrome Awareness Day. According to the Children's Craniofacial Association (PDF): Moebius syndrome is a rare congenital (present at birth) developmental disorder, characterized by absence or underdevelopment of the nerves that control facial (cranial nerve 7) and eye movements (cranial nerve 6)...


    Blog   -  moebius syndrome awareness day


The Steve Gleason Enduring Voices Act


  Posted on May 19, 2017 - 3:33pm

“When a person is diagnosed with ALS, or amyotrophic lateral sclerosis, he is expected to fade away quietly and die. This is not okay.” In 2015, Congress overwhelmingly approved a bill that made sweeping changes to Medicare. Included in the bill: a provision to no longer fund the purchase of speech-ge...


    News And Updates


A recent article from the Associated Press highlights the soothing effect pets can have on children with autism. The story includes photos of Zucca, a black Labrador, and Perry, who provide a calming influence during potentially stressful trips to the dentist. After years of terrifying visits to the dentist, the 9-year-...


    Blog


Support For Children With Rare Illnesses


  Posted on Apr 28, 2017 - 11:12am

“There is hope…don’t give up.” When a child is diagnosed with a rare illness, it can be devastating for parents. Depending on the condition, there may be multiple resources that can be tapped into for advice, information…and a shoulder to lean on when it becomes overwhelming. But what if t...


    Blog


Summer Camp


  Posted on Apr 12, 2017 - 2:47pm

It's almost summer, and it's almost time for summer camp! Summer camp is a great opportunity for kids to learn independence, make friends, have fun…and be kids! Looking for a camp to attend? Visit our Summer Camps page to find a camp experience near you. Have an AAC-friendly summer camp you'd like to include? Subm...


    Blog


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