Caregiver Resource Center Blog

Stories of people who are out there, learning, teaching… and growing. They're our heroes, and we invite you to learn more about them.

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Support For Children With Rare Illnesses


  Posted on Apr 28, 2017 - 11:12am

“There is hope…don’t give up.” When a child is diagnosed with a rare illness, it can be devastating for parents. Depending on the condition, there may be multiple resources that can be tapped into for advice, information…and a shoulder to lean on when it becomes overwhelming. But what if t...


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Summer Camp


  Posted on Apr 12, 2017 - 2:47pm

It's almost summer, and it's almost time for summer camp! Summer camp is a great opportunity for kids to learn independence, make friends, have fun…and be kids! Looking for a camp to attend? Visit our Summer Camps page to find a camp experience near you. Have an AAC-friendly summer camp you'd like to include? Subm...


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Parents who pull their children out of public schools on the strength of a private school voucher could find themselves unknowingly giving up their rights to the very help they were hoping to gain. The New York Times reports that many parents may not realize that by abandoning public schools, they give up their protections...


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Runner Spotlight: Karla Perez


  Posted on Feb 9, 2017 - 10:08am

Meet Karla! She is the super dedicated mom to sweet Luz who battles Rett Syndrome, a neurological disorder that mainly affects girls and robs them of their ability to speak, use their hands ... or run. She says she doesn't consider herself an athlete, but dictionary.com says an athlete is "a person trained or gifted in exer...


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Today Is Moebius Syndrome Awareness Day


  Posted on Jan 24, 2017 - 2:37pm

Jan. 24th is Moebius Syndrome Awareness Day. According to the Children's Craniofacial Association (PDF): Moebius syndrome is a rare congenital (present at birth) developmental disorder, characterized by absence or underdevelopment of the nerves that control facial (cranial nerve 7) and eye movements (cranial nerve 6)...


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Two Lives, Changed


  Posted on Dec 7, 2016 - 2:42pm

The odds, they told her, were astronomical. The chances of her son having a rare disorder were the same as being struck by lightning. And then lightning struck once more. For Barrington, NJ, residents Kelly Sexton and her husband, Ryan, getting an official diagnosis for their two sons, Dylan, 7, and Logan, 5, was a myster...


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