Articles



Adeline Bailey Overcomes Communications Challenges


  Posted on Oct 3, 2016 - 1:12pm

"Every day you have with your child is a gift," says Natalie Bailey, mother of six-year-old Adeline. That philosophy has helped Natalie and her husband, Dr, Stephen Bailey, contend with Adeline's developmental disabilities stemming from Hypoplastic Left Heart Syndrome (HLHS). "During a routine sonogram at 24 weeks gestatio...


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Stephanie Taymuree has witnessed huge advances in augmentative and alternative communication (AAC) during her nearly 40 years as a speech-language pathologist (SLP) and special educator, and her implementation of AAC technology in the classroom is unrivaled. But she still finds it thrilling when a student embraces AAC to ex...


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Two Lives, Changed


  Posted on Dec 7, 2016 - 2:42pm

The odds, they told her, were astronomical. The chances of her son having a rare disorder were the same as being struck by lightning. And then lightning struck once more. For Barrington, NJ, residents Kelly Sexton and her husband, Ryan, getting an official diagnosis for their two sons, Dylan, 7, and Logan, 5, was a myster...


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Today Is Moebius Syndrome Awareness Day


  Posted on Jan 24, 2017 - 2:37pm

Jan. 24th is Moebius Syndrome Awareness Day. According to the Children's Craniofacial Association (PDF): Moebius syndrome is a rare congenital (present at birth) developmental disorder, characterized by absence or underdevelopment of the nerves that control facial (cranial nerve 7) and eye movements (cranial nerve 6)...


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Runner Spotlight: Karla Perez


  Posted on Feb 9, 2017 - 10:08am

Meet Karla! She is the super dedicated mom to sweet Luz who battles Rett Syndrome, a neurological disorder that mainly affects girls and robs them of their ability to speak, use their hands ... or run. She says she doesn't consider herself an athlete, but dictionary.com says an athlete is "a person trained or gifted in exer...


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Parents who pull their children out of public schools on the strength of a private school voucher could find themselves unknowingly giving up their rights to the very help they were hoping to gain. The New York Times reports that many parents may not realize that by abandoning public schools, they give up their protections...


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