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Meet Karla! She is the super dedicated mom to sweet Luz who battles Rett Syndrome, a neurological disorder that mainly affects girls and robs them of their ability to speak, use their hands ... or run. She says she doesn't consider herself an athlete, but dictionary.com says an athlete is "a person trained or gifted in exer...
This page has moved! Please visit https://www.prentrom.com/caregivers/moebius-syndrome-awareness-day to read the article.
The odds, they told her, were astronomical. The chances of her son having a rare disorder were the same as being struck by lightning. And then lightning struck once more. For Barrington, NJ, residents Kelly Sexton and her husband, Ryan, getting an official diagnosis for their two sons, Dylan, 7, and Logan, 5, was a myster...
Stephanie Taymuree has witnessed huge advances in augmentative and alternative communication (AAC) during her nearly 40 years as a speech-language pathologist (SLP) and special educator, and her implementation of AAC technology in the classroom is unrivaled. But she still finds it thrilling when a student embraces AAC to ex...
"Every day you have with your child is a gift," says Natalie Bailey, mother of six-year-old Adeline. That philosophy has helped Natalie and her husband, Dr, Stephen Bailey, contend with Adeline's developmental disabilities stemming from Hypoplastic Left Heart Syndrome (HLHS). "During a routine sonogram at 24 weeks gestatio...
Joey Summers, the recent winner of a prestigious award for exemplary Ohio special education students, enjoys using his augmentative and alternative communication (AAC) device to tell jokes and charm his teacher and therapy team. But communication hasn’t always come easy for this bright young man. It took a caring pro...