Caregiver Resource Center Blog

Stories of people who are out there, learning, teaching… and growing. They're our heroes, and we invite you to learn more about them.

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Caroline: Rett Syndrome Doesn't Slow This Girl Down!


  Posted on Aug 15, 2018 - 3:29pm

"When she was eight months old, I had a nagging feeling something was off." For Marta Conner, this was the first indication that something was happening with her daughter, Caroline. Searching for a Diagnosis "Our girls develop normally for the first year or so," she said, so while Caroline seemed to be hitting her develo...


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Ten Tips For Back To School!


  Posted on Aug 15, 2018 - 3:10pm

Back-To-School; Are You Ready? Here are 10 Things You Need to Know! It’s that time again –school bells are ringing! It’s tough to adjust from the long, slow summer days to the hectic pace of the school year, but we’re here to help. But, we want to make sure you’re prepared to support your stu...


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News & Notes


  Posted on Aug 15, 2018 - 11:18am

News of note: Remembrance: Amber Tatro Amber Tatro, who's family sued on her behalf to expand services schools were required to provide disabled children, has recently died at age 42. Read her obituary in The New York Times Read her obituary in The Washington Post Poetry Is a Way of Being in the World That Wasn&rsq...


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Meet Oscar And Odie


  Posted on Aug 8, 2018 - 11:06am

“It kind of surprises me how nervous people get about the device.” For Mary Kvitko, PRC’s Accent 800 has meant the world to her family – and to her five year-old son, Oscar. The Road to PRC Because he is nonverbal, Oscar – a bubbly, happy, easygoing little boy – first began communicati...


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Welcome Orange Effect!


  Posted on Jun 28, 2018 - 11:31am

"Making sure children with speech disorders receive the speech therapy and technology they need." For Orange Effect founder Joe Pulizzi and his wife, Executive Director Pam Pulizzi, it's more than just a mission statement - it's their joy and their passion. Cleveland-based Orange Effect is the foundation they establishe...


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May 5-12 Is Cri Du Chat Awareness Week


  Posted on May 9, 2018 - 3:48pm

Also known as 5p-minus Syndrome or Lejeune’s Syndrome, Cri Du Chat is a rare genetic disorder in which a variable part of chromosome 5 is missing or deleted. The disorder was first described by Dr. Jerome Lejeune in 1963, who named it Cri Du Chat, or cry of the cat, based on the characteristic, cat-like cry of affecte...


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