Jan. 24th is Moebius Syndrome Awareness Day.
According to the Children's Craniofacial Association (PDF):
Moebius syndrome is a rare congenital (present at birth) developmental disorder, characterized by absence or underdevelopment of the nerves that control facial (cranial nerve 7) and eye movements (cranial nerve 6).
Most people with Moebius syndrome have weakness or complete paralysis of the facial muscles. Children and adults with facial paralysis may be unable to smile, frown, raise their eyebrows, close their eyelids or pucker their lips. This not only results in lack of facial expression but may also result in drooling and difficulty with speech. Infants can have difficulty with sucking and swallowing.
Other features of Moebius syndrome can include:
- Motor delays due to upper body weakness
- Strabismus (crossed eyes)
- Dry eyes and irritability
- Dental problems
- High palate
- Cleft palate
- Hand and feet problems including club foot and missing or fused fingers (syndactyly)
- Hearing problems
- Poland’s syndrome (chest wall and upper limb anomalies)
- Moebius Syndrome Foundation
- National Organization for Rare Disorders
- U.S. National Library of Medicine
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